Journals
Magazine:
THINKING SKILLS AND CREATIVITY
ISSN:
1871-1871
Year:
2022
Vol:
46
Ppgs:
101179
Society's understanding of palliative care has room for improvement. Although the World Health Organisation highlighted palliative care as a human right, many people still lack access to this crucial form of treatment. The paucity of understanding and social discussion surrounding palliative care has, moreover, negatively impacted its development and implementation. This study therefore aims to construct a strategy that will empower a specific community to solve their own palliative care-related misunderstandings. Using Participatory Action Research and Design Thinking methodologies and adopting the strategy of Public Engagement in Responsible Research and Innovation, a design group worked for three months through five virtual focus groups. Moving through the phases of empathizing, defining, ideation, prototyping, and testing, the design group generated 33 ideas to address palliative care-related problems. Ideas related to self-learning, the use of technology, and the exchange of staff experiences are highlighted as innovative ways to promote palliative care. The design group adopted a variety of strategies, used disruptive tools, and created and tested rapid prototypes to discover novel solutions. This method of working, centred on interdisciplinarity and creativity, presents an efficient way to involve the members of a community in solving their own problems.
Magazine:
NURSE EDUCATION TODAY
ISSN:
0260-6917
Year:
2021
Vol:
106
Ppgs:
105001
BACKGROUND: Cultural sensibility is an important concept linked to the achievement of cultural competence. Health professionals must first improve their cultural sensibility to become culturally competent and to be able to offer competent care to culturally diverse populations. Aim To develop and psychometrically test the Cultural Sensibility Scale for Nursing (CUSNUR), a cultural sensibility scale that can be used in nursing for the achievement of competencies needed to care for culturally diverse populations.
DESIGN AND METHODS: The cross-sectional survey was conducted over two stages. The first stage involved the cross-cultural and discipline-specific adaptation of an existing scale addressing this concept in the field of law using the reverse translation method. Second, validation of the scale was carried out from October 2016-June 2017 by studying the psychometric properties of the questionnaire through an analysis of content acceptability and reliability and through exploratory factor analysis (EFA).
RESULTS: The questionnaire was designed to be clear, easy to understand, and of adequate length, and experts involved in content validation agreed that the scale meets these criteria. A total of 253 nursing students participated in the validation stage. Four factors were identified from the EFA: (1) patient and health professional behaviours, (2) self-assessments, (3) self-awareness, and (4) cultural influence. Two items were excluded. Factorial saturation is adequate for all factors (>0.30). The Cronbach alpha was measured as 0.75.
CONCLUSIONS: This study presents the first version of the CUSNUR and demonstrates that the scale is valid and reliable.
Magazine:
NURSE EDUCATION TODAY
ISSN:
0260-6917
Year:
2021
Vol:
101
Ppgs:
104879
Education in palliative care is a required competence for the nursing degree.Pedagogical strategies in palliative care are mainly aimed at promoting an understanding of patients with advanced disease. Phenomenological texts are stories intended to evoke lived experiences and help understand these complex situations. However, there is no evidence regarding the experience of reading phenomenological texts in nursing. The aim of this study is to determine what impact nursing students have when reading a phenomenological text about the experience of people living with advanced cancer. The students¿ writings showed that reading the phenomenological text caused them to reflect and feel moved and challenged. The impact on the students is grouped into three categories: the experience of the corporeality of patients makes students aware of the importance of the body; the disease as an individual transformative process challenges students; and the experiences of advanced cancer
patients make students aware of the importance of how they care for patients and their families. The reading of a phenomenological text on the experience of living with advanced cancer is innovative and may be a teaching method that promotes care focused on the person with advanced illness, key aspect for student¿s competency in clinical practice.
Magazine:
QUALITATIVE HEALTH RESEARCH
ISSN:
1049-7323
Year:
2020
Vol:
30
N°:
8
Pp:
1143 - 1155
Abstract
Literature suggests that it is possible to live well with advanced cancer but little is known about the process. In this article, we present a secondary analysis of experiences of living with advanced cancer (n=22) that refines the theory of Living Well with Chronic Illness¿ for a different context and population. The refined theory explains the experience of living well with advanced cancer illuminating a five phase iterative process: struggling, accepting, living with advanced cancer, sharing the illness experience, and reconstructing life. These five phases revolve around the core concept of Awareness of Dying, which varied from awareness of the possibility of dying, to accepting the possibility of dying, to acceptance that ¿I am dying.¿ Awareness of Dying led to a focus on living well with advanced cancer and movement towards living a life rather than living an illness.
Magazine:
PALLIATIVE MEDICINE
ISSN:
1134-248X
Year:
2018
Vol:
25
N°:
2
Pp:
105 - 113
Amyotrophic lateral sclerosis (ALS) affects different aspects of people's lives and therefore, the goal of this study is to know the health-related quality of life (HRQoL) of these patients. A narrative review of articles from the last 10 years was carried out. The search strategy included the words core topic "amyotrophic lateral sclerosis" and "health-related quality of life" and their synonyms translated into English and was applied in Cochrane, Cinahl, Pubmed, PsycInfo and Dialnet. Nine articles were included after applying the selection criteria. The level of evidence generated by the articles was analysed using the indications of the US Agency of Health Research and Quality as reference letter and the results of the programs of study were subsequently analysed and grouped by subject area. A total of 3 areas were identified core topic: the importance of the emotional, social and physical needs of ALS patients; the presence of the caregiver and the patients' HRQoL; and the types of coping that can help HRQoL. The physical dimension has the worst HRQoL results, but since the social and emotional dimensions are also less significantly affected, the overall HRQoL score remains stable. The family and the patient's environment emerge as an aspect core topic to be considered in the care of these patients.
Magazine:
PALLIATIVE & SUPPORTIVE CARE
ISSN:
1478-9523
Year:
2018
Vol:
16
N°:
1
Pp:
73-79
ICS ATLANTES
The PDI has intrinsic therapeutic value and is useful in clinical practice, and it is also a way of examining issues related to dignity and the meaning of life within the context of advanced-stage illness. There is a need for studies that examine patient experiences through a PDI-based intervie
Magazine:
NURSING JOURNAL ROL DE ENFERMERIA
ISSN:
0210-5020
Year:
2017
Vol:
1
N°:
40
Pp:
16 - 24
INTRODUCTION. Knowing how patients coexist with a chronic process is necessary to provide individualised and comprehensive care. At present, there is no validated scale that assesses living with a chronic process such as Parkinson's disease. OBJECTIVES. The objectives were: 1) to define the concept of living with a chronic process; 2) to design a scale to measure Degree of living with a chronic process, specifically Parkinson's disease. METHODOLOGY. Two methodological steps were carried out. Regarding the first, an analysis of the concept of living with a chronic process was carried out using Rodgers' evolutionary method. The second methodological step was the design of the scale, through the guide proposal by DeVellis. RESULTS. Through the concept analysis it was identified that Coexistence with a chronic process is a complex, dynamic, cyclical and multidimensional process composed of the attributes of Acceptance, Coping, Self-management, Integration and Adaptation. As for the results of the design scale, a self-completed measure was developed, with five response options, subject Likert and 27 items. CONCLUSIONS. The scale designed is an innovative measure of potential clinical interest that allows us to identify which factor or factors make the person live better or worse with the illness and, consequently, to intervene in a comprehensive manner, in accordance with the individual needs.
Magazine:
AQUICHAN
ISSN:
1657-5997
Year:
2017
Vol:
17
N°:
3
Pp:
241 - 242
Magazine:
GEROKOMOS
ISSN:
1134-928X
Year:
2017
Vol:
28
N°:
1
Pp:
25 - 29
Falls are unintentional events that cause you to lose your balance and hit the ground or other firm surface that
balance and landing on the ground or other firm surface that stops the body¿.
stops it¿. Recurrent falls (occurrence of two or more falls in a year) are a frequent problem in residential care
are a frequent problem in residential care facilities, and predispose older people to disability.
older people to disability, dependency and multiple illnesses.
diseases. The application of preventive measures can significantly reduce
their incidence and, therefore, their consequences.
The goal of this work is to identify which nursing interventions can help to prevent recurrent falls.
can help prevent recurrent falls in institutionalised older people, and minimise the impact
institutionalised elderly people, and to minimise the emotional impact of these episodes.
episodes. To this end, a clinical case is developed and, after analysing the scientific evidence, interventions are proposed to prevent falls.
evidence, interventions are proposed to prevent the recurrence of a fall episode and its consequences.
a fall episode and its consequences. The analysis of this case is structured
evaluation of risk of recurrent falls and interventions to prevent them.
prevention interventions. And, in turn, each section is divided into physical and emotional aspects.
emotional aspects. The literature reflects that the evaluation of the risk of falls is
of falls is core topic to implement a care plan. Knowing the intrinsic and extrinsic
intrinsic and extrinsic risk factors will help professionals to design prevention interventions.
prevention interventions. In addition, the emotional impact of falls on
emotional impact of falls on patients has been identified and some interventions to alleviate it are proposed.
interventions to alleviate this impact.
Magazine:
PALLIATIVE MEDICINE
ISSN:
1134-248X
Year:
2016
Vol:
23
N°:
1
Pp:
52
Magazine:
NPJ PARKINSON'S DISEASE
ISSN:
2373-8057
Year:
2016
Vol:
2
N°:
UNSP 16022
Understanding how a person lives with a chronic illness, such as Parkinson's disease (PD), is necessary to provide individualized care and professionals role in person-centered care at clinical and community levels is paramount. The present study was aimed to analyze the psychometric properties of the Living with Chronic Illness-PD Scale (EC-PC) in a wide Spanish-speaking population with PD. International cross-sectional study with retest was carried out with 324 patients from four Latin American countries and Spain. Feasibility, acceptability, scaling assumptions, reliability, precision, and construct validity were tested. The study included 324 patients, with age (mean +/- s.d.) 66.67 +/- 10.68 years. None of the EC-PC items had missing values and all acceptability parameters fulfilled the standard criteria. Around two-third of the items (61.54%) met scaling assumptions standards. Concerning internal consistency, Cronbach's alpha values were 0.68-0.88; item-total correlation was 40.30, except for two items; item homogeneity index was 40.30, and inter-item correlation values 0.14-0.76. Intraclass correlation coefficient for EC-PC stability was 0.76 and standard error of measurement (s.e.m.) for precision was 8.60 (for a EC-PC s.d. = 18.57). EC-PC presented strong correlation with social support (r(S) = 0.61) and moderate correlation with life satisfaction (r(S) = 0.46). Weak and negligible correlations were found with the other scales.
Magazine:
PARKINSONISM AND RELATED DISORDERS
ISSN:
1353-8020
Year:
2016
Vol:
25
Pgs.:
52 - 57
Introduction: To explore the psychometric attributes of a new Satisfaction with Life Scale (SLS-6) in a wide Spanish-speaking population with Parkinson's disease (PD).
Methods: This was an international, cross-sectional study. Several rater-based and patient-reported outcomes measures for evaluation of PD (e.g., Scales for Outcomes in Parkinson's Disease-Motor) and other constructs (e.g., Duke-UNC Functional Social Support Questionnaire, Scale for Living with Chronic Illness) were applied together with the SLS-6. Acceptability, scaling assumptions, reliability, precision, and construct validity were tested.
Results: The study included 324 patients from five countries, with age (mean ± standard deviation) 66.67 ± 10.68 years. None of the SLS-6 items had missing values and all acceptability parameters fulfilled the standard criteria. Scaling assumptions allowed the calculation of a summary index from items 2 to 6, complementary to the global evaluation (item 1). For these five items, Cronbach's alpha was 0.85; the corrected item¿total correlation 0.53¿0.73; inter-item correlation, 0.45¿0.70, with an item homogeneity index of 0.55. The standard error of measurement, based on Cronbach's alpha for a single observation, was 3.48. SLS-6 correlations were moderate to strong (rs ¿ 0.35) with the patient-reported outcomes and weak to moderate with the rater-based assessments used in the study. The SLS-6 total score was significantly different according to PD severity levels establised
Magazine:
EUROPEAN JOURNAL OF CANCER CARE
ISSN:
0961-5423
Year:
2016
Vol:
25
N°:
4
Pp:
551 - 569
The aim of the study was to understand the experience of people living with advanced-stage cancer through literature. The search included The Cochrane Library, PubMed, PsycInfo, CINAHL and Cuiden. Thirteen studies were included. A qualitative goal-synthesis was conducted. One thread emerged from the thematic synthesis: the desire to live as normally as possible, despite being aware of the proximity of death. Three themes also emerged: "a process that is unique" with its four sub-themes; "support network" and "health context," each of them having two sub-themes. This study concludes that living with advanced-stage cancer is a unique and complex process which has both positive and negative aspects. The review provides a comprehensive view of the experience, which considers the importance of the support network and the health context in which the person lives. In this study, "normalcy" is the adjustment to the new reality and living as closely as possible to the way one lived before the disease, while developing a new relationship with being finite and death. A better understanding of the experience of living with advanced-stage cancer will help health professionals to identify the needs of the patients in order to plan individual, high-quality care.
Magazine:
JOURNAL OF NEUROLOGY
ISSN:
0210-0010
Year:
2015
Vol:
61
N°:
10
Pp:
447 - 453
Magazine:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN:
1137-6627
Year:
2015
Vol:
38
N°:
3
Pp:
439 - 452
A quarter of the people with heart failure are at an advanced stage of the disease, during which they experience numerous common and distressing symptoms that have an impact on all spheres of their life. In this context, there is a need for frequent assessment and clinical monitoring of patients. The aim of this review is to identify the instruments used in assessing patients with advanced heart failure. For the purposes of this study, any type of questionnaire, scale or functional test used to assess some aspect of these patients was considered to be an instrument. Forty-nine tools were identified that make it possible to assess symptoms, psychological, cognitive and spiritual aspects and quality of life. The information provided on the most used instruments and their availability and applicability is a first step for their possible integration into daily clinical practice. Thus, professionals who work with these patients can improve the identification of specific needs, enabling their subsequent management and monitoring.
Magazine:
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
ISSN:
0885-3924
Year:
2015
Vol:
50
N°:
6
Pp:
874-81
The Spanish version of the PDI showed adequate psychometric properties when tested with advanced cancer patients. This research provides a three-factor alternative in Spanish to the PDI.
Magazine:
ENFERMERIA (MONTEVIDEO)
ISSN:
1688-8375
Year:
2015
Vol:
4
N°:
2
Pp:
10 - 11
Full title of the journal: Enfermería: Cuidados Humanizados. Its ISSN is: 1688-8375.
Magazine:
ANALES DEL SISTEMA SANITARIO DE NAVARRA
ISSN:
1137-6627
Year:
2015
Vol:
38
N°:
2
Pp:
225-234
All participants (n=40) completed the study. The internal consistency with Cronbach¿s alpha was 0.71 and the inter-rater harmony obtained a moderate to good Kappa index for most items (k=0.4-0.81) except for ¿language and gingiva¿ (k=0.33-0.37). Concurrent validity with the WHO mucositis scale was acceptable (r=0.458). All nurses (n=6) found the scale easy to understand and useful in the clinical internship . Patients said they did not find the evaluation of the mouth uncomfortable with the scale.Conclusions. The Spanish version of the OAG is a valid and reliable instrument in cancer patients. It is easy to use in the clinical internship and well accepted by patients.
Magazine:
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
ISSN:
0885-3924
Year:
2014
Vol:
47
N°:
1
Pp:
189 - 197
The high responsiveness confirms the value of the MDAS for ongoing delirium assessment. Two differentiated factor loadings point to a potential future need for MDAS subscales
Magazine:
CUADERNOS DE BIOETICA
ISSN:
0328-8390
Year:
2014
Vol:
25
N°:
84
Pp:
243-256
All the models included in this review provide health professionals with a starting point for reflection and incorporation of practices that seek to preserve the social dignity of terminally ill patients. One of the models identified has been applied to the internship clinic with positive results.
Magazine:
NURSING GOALS
ISSN:
1138-7262
Year:
2014
Vol:
17
N°:
4
Pp:
49-54
Magazine:
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
ISSN:
0885-3924
Year:
2013
Vol:
45
N°:
1
Pp:
129-36
The ESAS-r is a valid instrument with adequate psychometric characteristics. This version is preferred by patients with advanced cancer. The Spanish version of the ESAS-r can, therefore, replace the use of the ESAS.
Magazine:
European Journal of Cancer
ISSN:
0959-8049
Year:
2011
Vol:
47
N°:
12
Pp:
1863 -1872
Conclusion ESAS is a valid, reliable, responsive and feasible instrument with adequate psychometric properties when tested on Spanish advanced cancer patients....
Magazine:
Journal of Palliative Medicine
ISSN:
1096-6218
Year:
2011
Vol:
14
N°:
1
Pp:
4 - 5
