Begoña Sánchez, Leire Sola, Nurses from the Clínica Universidad de Navarra
Palliative care does not forget children
On October 13 we celebrate World Palliative Care Day, a day on which all of us who, in one way or another, are in contact with this field, take the opportunity to reflect on topic. Some of us do so as health professionals and others experience it as patients, family members or people close to them. These patients and their families are the driving force behind everything we do and drive us day after day to continue working with enthusiasm to offer them the best care at this time of their lives. The way we palliative care professionals care for the patient at this stage is by "living their story". This means accompanying and empathizing with them, sharing their biography, which at status is influenced by the disease. In this way, we will help to reduce their suffering and that of their family.
This status which may seem difficult for palliative care professionals to approach, is often rewarding, makes us grow at staff and financial aid us to value the things that are really worthwhile.
Among all the palliative care patients we see at this stage of the disease, we also meet children and adolescents. Their life has just begun to develop and they are gradually experiencing the various changes that are taking place in their development and in the finding world around them. Sometimes this journey, which has just begun, is suddenly altered one day by the disease and sometimes continues until they reach the final stage of their life, a life that is almost"brand new".
Palliative care professionals help the child to alleviate or palliate his suffering, with good control of physical symptoms (pain, tiredness, anxiety...), living his "little" story and supporting his family.
The fact that he has not completed his project in the different evolutionary stages of his life, does not mean that the time he has lived has not been plenary session of the Executive Council nor will it cease to be so in the time he has left of his existence. The child has a perspective of the world that, although different from that of the adult, does not mean that he/she cannot be happy. We professionals accompany them on this path favoring and facilitating the child to reach what for him is happiness. We have to take care to mitigate the suffering of the family, not letting the status, while still being hard, prevent them from sharing this last stage of life.