On Sunday, June 11, from 9 a.m., a charity women's soccer tournament in favor of acute intermittent porphyria will be held in the sports facilities of Mutilva. The event, organized by the research center Applied Medicine (CIMA) of the University of Navarra, aims to raise awareness of acute intermittent porphyria and raise funds for its research. sponsorship This solidarity initiative is supported by the City Council of Mutilva, the Navarra Football Federation, Navarra Deportiva and Hotel Blanca de Navarra.

Ester Blanco, player and researcher at CIMA, is the technical director of this sports meeting between the local teams Mulier FCN (Second Division), C.F. Ardoi (Second Division) and Club Atlético Osasuna. "As visitors, the women's teams of Athletic Club (First Division) and the recent league champion, Atlético de Madrid, will participate," she explains. After the tournament there will be a solidarity raffle with gifts donated by the collaborators: Zumba Squad, Sandra fotografía, Intersport, Planet Fitness Pamplona, Movimotor, Fútbol es Fútbol, Ochoa-Lacar, Viajes Sarasate, FC. Barcelona, Frutas y Verduras Azahar-Berian, Peletería Groenlandia and Restaurante deboca.

The entrance costs 2 euros and the full amount will go to strengthen the line of research that is developed in the CIMA on this rare disease. In addition, a zero row has been set up for all those interested in collaborating.

development of new therapies

Acute intermittent porphyria is a rare disease Genetics of hepatic origin that affects approximately 5 out of every 100,000 inhabitants. It manifests as acute crises, with abdominal pain, nausea, vomiting, constipation, tachycardia and hypertension, insomnia, anxiety and depression. There is currently no specific treatment for this disease, which can sometimes cause significant neurological damage and even require liver and/or kidney transplantation.

Researchers at CIMA have more than 25 years of experience in the study of porphyria. They collaborate with the Hospital de Navarra, the Hospital de Tudela and other national and international groups dedicated to porphyria in order to develop new therapies and design methods to detect early the onset of the disease before the first symptoms appear.

"The disease arises from a mutation Genetics that under certain circumstances, such as some diets or prolonged stress, causes the symptoms of this disease. However, the main triggering factor is the female hormones associated with the menstrual cycle. Therefore, porphyria manifests itself especially in young women with important work and family responsibilities," explains Dr. Antonio Fontanellas, researcher , who is the main researcher of this disease at CIMA.

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